The parents of a 5-year-old girl in Oregon suffering from an incurable disease is allowing the toddler to make her own end-of-life decision.
Five-year-old Snow suffers from an incurable and genetic neurodegenerative disorder that has made her unable to use her arms and legs. Doctors predict that the little girl could die the next time she catches something as minor as a common cold.
When Julianna was four, her parents offered her a choice few kids have to entertain: the next time she falls ill, whether she wants to go to “Heaven or the hospital?”
Can a toddler make an informed decision about life and death?
Aaron Kheriaty, Director of Medical Ethics Program at UC Irvine Health and Associate Clinical Professor at the Department of Psychiatry & Human Behavior at UC Irvine